October 25, 2014
I thank God for today.
It has been full of adventure.
I choose to call it a Lewy Body Dementia roller coaster day.
It’s been a day full of changes.
After only four hours of sleep, I visited physical therapy and spent an hour with Kyle Thompson.
We worked on our exercises and received heat and muscle stimulation. WOW! It really felt good.
Kyle, is so eager to gain more knowledge about how to approach and help a person with dementia.
He even allowed me the privilege of sharing with him the visuo-spatial loss that occurs in dementia.
I only experience a slight decrease in this area at the present; however, I realize that it will progress
as the disease progresses.
After lunch, my roller coaster ride had reached the top of the track. I started feeling tired and felt
the need to rest. Rest turned to fog. Fog turned to a decrease in attention and focus.
While sitting on the sun porch this afternoon, some friends came to visit Judy and I. During the
time they were here, Judy got excited about something that was being talked about. As she got
excited, she increased the volume of her speech and quickly changed her position and appeared to
be attempting to quickly get out of the chair. All of this ignited in me a sense of being lost, fear,
anger and so much more. I immediately grabbed both sides of my head and screamed and started
crying. Judy was not the cause of this. She was just being happy; and, I was thankful for that. It was
a strong message from “Lewy” to me that he is still here.
I left the sun porch and went into the den to be by myself and regroup. There is always a lot of
hurt and anger when this occurs. I do not want to be like this. It is so embarrassing when it occurs.
I always thank God that it does not happen very frequently.
The tide turned and the roller coaster started back up the hill. It was such a joyful ride as my
attention and focus returned. I even had the opportunity early this evening to virtually meet
through zoom with a friend who has dementia. We shared together; and, he lifted me up and
helped restore peace and calm in my life.
As I go to bed, I thank my heavenly Father for every provision that He has made today. He has
provided to me a reasonably good day. His provisions are always on time.
Phillipians 4:19 – And my God will meet all your needs according to the riches of his glory in
Christ Jesus.
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